... My general fatigue seems about the same.
Now, I have the ability to lay around forever. For example, yesterday was a fasting day. I got out of bed @16:00.
Really, the only physical difference/anomaly I notice are bowel habits (of all things).
Prostate drugs and vitamin D are really the only things I take.
Everything else is remarkably the same.
I shoot for midnight as a bedtime. I sleep. (Not all MS people can.)
I have no headaches.
The only thing I have to report, really, is there's nothing to report...
The Accomplice: I understand it to be a binary sort of situation. Stable or not. No other improvements or problems.
He should continue "as-is" indefinitely, which would be amazing because he's been in solid condition for a long time, and the medication side effects are not trivial. Most people do stay unchanged in their aging study (99% of people don't need meds again). If something were to go wrong -the MS raised its ugly head- then there would be a new lesion and some new identifiable body slippage. A new symptom would appear; we'd freak out (or maybe just I would?) as we would try to decide whether it's MS, aging, or something else; they'd throw him back on meds, and... that new neural damage would be his permanently and they'd start their timers over for removing him from the meds again.
So, the answer is: so far so good. No news is the very best news.
b1: ...I had a drink a couple nights ago. First time in donkey's years.
(A cocktail waitress had it and didn't know who'd ordered it. A "buttery nipple." [I guess it's a good thing she didn't have a line of heroin.])
I could not have taken that action in my med days -- knowing it would increase my liver damage.
I think my diet has as big an impact as anything. [And for sure the meditation doesn't hurt.]
TA: Meanwhile, I can't speak for how you feel being off the meds... I just get to observe behaviors? I assume you feel emotionally great that you no longer have to take those pills... And, hopefully everything else is "no news."
b1: Stable or not is an extremely good way to describe the situation.
My next MRI will be interesting. They preferred I get one before I stopped meds...I preferred to not jackhammer my liver anymore.
I 'feel' fine.
I haven't had a big euphoria moment in several months (i.e. "I feel better than I have in years,' but I haven't had any crashing depression either -- that's the dangerous one, and I'm certainly capable of it.
Kπ: Thank you both, that sounds as good as you could have hoped for. I can see how some sign of slipping will be scary, but 99% is a reassuring stat.
b1: In my discussions with the PA on "quitting day" I think she said 2-4% chance of relapse...
... But considering that I'm not even certain I've had relapse #1, I don't consider those odds to be legitimately troubling.
Kπ: In the range of possible responses to my question,
.. But I seem at least, "okay."
I'm not having any flare ups that I'm aware of..."
Is considerably preferable to,
I no longer can walk out to my fire pit
b1: The way I see it, the thing about MS is not to overthink it.
If you do, your mind can go into holes wider than the planet by needlessly overanalyzing.
